Adrianna Hall

Hi all, I have just been to see Adrianna & family, first time in a few months, and boy what a change. Adrianna turned 1 in March and she is now a bundle of moving mischief; she shuffles along on her bottom using her feet and poor mum can’t take her eyes off her for a moment!

On the medical front it’s all good news as Adrianna now has a new consultant who has 20yrs experience with her syndrome. This has meant more information of ways to help her and the family as Adrianna grows older.

Look out for info coming soon about the sponsored parachute jump – the logistics of getting two people available at the same time is the only hold up. I am also hoping to get some new pictures to add and there’s mention of t-shirts arriving soon too.